Cystic fibrosis studies
Any new treatments or changes to the way care is delivered have to be proven to be safe and effective, which requires studies and trials that cost a lot of money and can require participants with cystic fibrosis to make additional trips to hospital so they can have measurements taken. With relatively low numbers of people able to take part, compared with more common conditions, this additional obstacle can mean that studies don't find enough participants, or are too expensive for the limited amount of funding available.
Our UK Cystic Fibrosis Registry holds the answer
Kevin is part of the CF START team, who will be carrying out a large UK study into the use of preventative antibiotics for reducing infections in children. In the video below, he explains how UK CF Registry data is making this study less of a burden for the participants, so they can focus on enjoying life outside of hospital while contributing to the future of care and treatment.
To support our work, make a donation or take a look at other ways to fundraise. Together, we're creating a brighter future for everyone with cystic fibrosis.