Register for day two
9:00 Conference registration
9:30 Welcome to day two
Dr Keith Brownlee, Director of Policy, Programmes and Support, Cystic Fibrosis Trust
09:45 Session one: UKCFC day one recap
Cystic Fibrosis Trust research team
Members of the Trust’s research team will reflect on day one of UKCFC, providing updates on: development of new therapies for cystic fibrosis, innovative ways to reduce the burden of care, Trust-funded research and personalized medicine of the future.
10:45 Session two: The challenges and opportunities of getting older with CF
A virtual conversation between two people with CF about their lived experience of and concerns about getting older with cystic fibrosis and all the challenges, concerns and happiness it brings.
11:00 Coffee & networking
11:15 Session three: The changing face of CF treatment and its impact on emotional wellbeing
Dr Samantha Phillips,UK Psychosocial Professions in CF Group (UKPPCF), Lead Clinical Psychologist for Adult and Paediatric Cystic Fibrosis Services at Bristol Children’s Hospital & Co-Chair UKPP-CF Group
12:00 Session four: Packing a punch, the importance of impact
Cystic Fibrosis Trust
Highlighting the collaborative relationship between supporters and the Cystic Fibrosis Trust and showing the impact their dedication has on the Trust’s ability to do the work it does.
12:45 Conference close
Richard Hunt, Chairman
13:00 Conference lunch
14:00 Afternoon workshops (60-90mins)
A) Positive parenting and resilience: Dr Mandy Bryon, Consultant Clinical Psychologist and Head of Psychological Services, Great Ormond Street Hospital & Helen Oxley, Consultant Clinical Psychologist, Manchester Adult Cystic Fibrosis Centre.
A workshop focusing on practical skills for parenting children with cystic fibrosis and dealing with unresolved issues in adulthood.
B) CFTR modulators: Where we are and where we are going: Elaine Bowman Specialist pharmacist - respiratory medicine, Royal Brompton and Harefield NHS Trust & Michael Dooney, CF pharmacist, Blackpool Adult CF Service and Manchester Adult CF Centre
An update on the use of CFTR modulators following their introduction in 2013 to the present and an outline of the potential breakthroughs and challenges ahead.