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Cystic Fibrosis Trust

Day 1

A day designed for a multidisciplinary clinical, research and academic audience. The agenda provided a broad overview of the pulmonary aspect of cystic fibrosis and gives an in-depth examination of the current state of research and clinical care for healthy lungs.

Check out the live streams of the day here for the chance to hear what happened on Day 1 of the conference. Below, you'll find the agenda to help you navigate through the live streams, and some links to additional video interviews with speakers.

Morning session live stream

Afternoon session live stream


Morning sessions

Welcome and introduction to Lungs for Life     
Ed Owen, Chief Executive, Cystic Fibrosis Trust

Breathe for Life (Comedy Awards)

The burden of care in keeping lungs healthy
Oli Rayner, Adult with cystic fibrosis

Lungs for life
'Lungs for life' is one of the key themes for the Cystic Fibrosis Trust's major five-year appeal. This one-day symposium explores research at the cutting-edge to help preserve lung function in people with cystic fibrosis, including tools to improve decision making.

Setting the scene, introduced by Professor Stuart Elborn, Queen's University Belfast.

Keynote: Early mucus obstruction and inflamation: pathogenis and strategies for therapeutic intervention
Professor Marcus A Mall, Professor of Paediatics, University of Heidelberg

Preventing lung damage, introduced by Professor Diana Bilton, Royal Brompton Hospital.
A series of talks on the contribution of pulmonary inflammation following lung infections and lung function decline.

Inflammatory cells in the CF airways
Professor Clifford Taggart, Queen's University, Belfast

Pulmonary inflammation. Friend of foe?
Professor Stuart Elborn Queen's University, Belfast

TORPEDO trial - nearly there!
Dr Simon Langton Hewer, Consultant Paediatrician and TORPEDO-CF Lead Clinical Investigator

Afternoon sessions

Biometrics of lung function, introduced by Dr Ed Nash.
A series of talks on innovation to assist decision-making.

Current issues around LCI (Lung Clearance Index)
Professor Jane Davies, Honorary Consultant in Paediatric Respiratory Medicine, Royal Brompton Hospital

CF START: a new registry-based approach to answering research questions
Rebecca Cosgriff, Registry Lead for the Cystic Fibrosis Trust
Dr Kevin Southern, Lead Clinician for Cystic Fibrosis Trust, Alder Hay Children's Hospital

How altering the immune system of donor lungs using ex-vivo lung perfusion improves outcomes
Dr James Fildes, Senior Lecturer, University of Manchester

Beyond small molecule interventions; genes and cells, introduced by Dr Bill Skach, Cystic Fibrosis Foundation
A series of talks on genes and cells, the next generation of therapies and developments in novel genetic and stem cell manipulations to treat cystic fibrosis.

Moving gene therapy into CF patients
Professor Eric Alton, Respiratory Medicine, National Heart & Lung Institute Imperial College, London

G QR-010: Modified Oligonucleotide Correction of the DF508 Mutation
Crystal Anglen, ProQR

Modelling cystic fibrosis with stem cells
Dr Ludovic Vallier, Cambridge Stem Cell Institute  

HOT OFF THE PRESS - The very latest research news - introduced by Dr Janet Allen, Cystic Fibrosis Trust

CTP-656: A Novel Next-Generation Once Daily CFTR Potentiator
Dr Scott Harbeson, Vice President, Translational Research, Concert Pharmaceuticals

Watch a video interview with Dr Scott Haberson.

Global perspectives on current cystic fibrosis research, introduced by Professor John Price, Trustee, Cystic Fibrosis Trust

Keynote: Accomplishments and future challenges in cystic fibrosis research
Dr Felix Ratjen, Division Chief of Paediatric Respiratory Medicine, The Hospital for Sick Children, Toronto

Watch a video interview with Dr Felix Ratjen.

Closing comments and close of day one

Drinks reception and networking opportunity - sponsored by Concert Pharma
Poster prizes for the Summer Students

Watch a video of the Research Competition results.

Research we fund

We fund research to tackle some of the most pressing issues in CF today. Find out how your donations are making a difference.

What is CF?

Cystic fibrosis, or CF, affects the lungs, digestive system and other organs, and there are over 10,600 people living with it in the UK.

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