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Cystic Fibrosis Trust
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Head of Healthcare Data and Pharmacovigilance

Salary: £53,162 per year plus benefits and flexible working

Contract type: Permanent

Full time position (35 hours per week)

Based in Aldgate, London


The Cystic Fibrosis Trust is the only UK-wide charity making a daily difference to the lives of people with cystic fibrosis, and those who care for them. We invest in cutting-edge research, drive up standards of clinical care, offer support for everyone affected by cystic fibrosis, and campaign hard on the issues that matter.

You will be providing leadership for the Cystic Fibrosis Trust’s Data team, building upon the success of the UK Cystic Fibrosis Registry, and in line with the overarching strategic priorities of the charity. You will work with partners to ensure data is used to enable people with CF to access safe, effective and quality care. With the Registry as a lynch pin, you will oversee the collection, curation and utilisation of clinical, patient reported outcomes and experience data, as well as NHS administrative, education, social deprivation, and environmental data.

Benefits include 30 days annual leave and opportunities for learning and development.

Closing date for completed application will be midday on Monday 10 June 2019. interviews will be held on the Tuesday 25 June .

Apply today 

If you feel you can contribute to helping us create a life unlimited for people with cystic fibrosis, take a look at the full role description complete the application and equal opportunities forms, and send these with your CV and a covering letter detailing your relevant experience to recruitment@cysticfibrosis.org.uk. The equal opportunities form will be separated from your application form prior to the selection process and is used for us to collect aggregated anonymous data only. All information you provide will be treated as sensitive data under the Data Protection Act 1998.

Your privacy

We welcome your interest in working with us here at the Cystic Fibrosis Trust. In order to review and manage your application, we need to collect certain personal information about you through your application. We are committed to protecting your personal information and being transparent in what we do with it. 

We will only use your personal information as required to manage your application to work with us, or as required by applicable law or regulatory requirements.  

We do ask that you help us monitor our performance on equality by completing the accompanying Equal Opportunities Form which contains no identifiable personal information. Doing so is optional, and any information you provide through this form will be used to provide generalised aggregated reports. It will not affect your application in any way and is kept separately.

In the event your application is unsuccessful, we will retain your information for up to 6 months, before it is disposed of confidentially.  

For more detailed information on your rights and how we use any data you provide us, please see our privacy policy.

Research we're funding

The Trust is committed to funding and supporting cutting-edge research to find new and better treatments for cystic fibrosis. Take a look at some of that work and the progress that is being made.

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What is cystic fibrosis?

Find out more about cystic fibrosis, its diagnosis and how it is treated, as well as useful links to our publications and other organisations who can help.

Read on

More information

If you would like to find out more about any of our campaigns, publications or anything else, get in touch and we'll be happy to help.

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