What is the role of CAG?
The two main roles of CAG are to:
1. ensure effective communication between the Trust and CF multi-disciplinary teams, people with CF and their families, and
2. advise on all Trust publications, from factsheets to consensus documents, to ensure they are accurate and evidence based.
Who is in CAG?
CAG is made up of a representative of each discipline on the CF multidisciplinary team to ensure all materials receive essential input from all aspects of the clinical care pathway. These include a clinician, physiotherapist, dietitian, psychologist, pharmacist and others. CAG is also currently in the process of recruiting representatives with CF and their families to sit on the group to ensure that the voices of the CF community are represented in the Trust’s publications. The chair of CAG is Dr Keith Brownlee, Director of Policy, Programmes and Support at the Cystic Fibrosis Trust.
What is CAG working on?
CAG is responsible for advising on a range of core Trust publications such as the nutrition leaflets and the body image booklet. They are currently reviewing the following factsheets: financial help, housing, a catalogue of support available from the Cystic Fibrosis Trust, and transition from paediatric to adult care. Future work will also include reviewing out of date factsheets such as those on bone health and steroid treatment in cystic fibrosis.
If you have any questions on CAG or their current work, please email CAG@cysticfibrosis.org.uk.